So a while back we were concerned with Samuel because he was pretty much always crying and never sleeping. We took him in to the doctor and they suggested avoiding wheat and dairy, and they took a urine sample. Ashton stopped eating breads and milk and pretty much anything that tastes good, and Samuel started sleeping more and having less gas. Two days after the doctor's appointment the health center called and informed us that Samuel had a bladder infection and that was probably responsible for his discomfort. He was on antibiotics for ten days and everything seemed fine. The doctors were concerned, however, because it is exceptionally rare for a little boy to get a UTI. Something about all that internal tubing. Apparently there's an anatomical condition typically associated with infant male UTIs, so they wanted to do a bunch of tests.
Keep in mind, Samuel's urine was sampled by putting a plastic bag on his male part. Not super sterile. I work with bacteria in a laboratory and all it takes is looking at it the wrong way to get contamination. So I didn't have much faith in his initial diagnosis to begin with. Samuel had to go up to the health center and get an ultrasound of his kidneys. He handled that like a champ, and the tech said she didn't see anything wrong.
Then we had to go to UVRMC to have a VCUG test run, where they run a catheter up to his bladder and inject a bunch of dye to take a contrast photo. That was last week. His appointment was at noon and he couldn't eat anything after 8, which is pretty much impossible for him. We got there at eleven to check in and get everything set up. The nurses were cool (except the nurse practitioner, who spent most of the time texting her family because her kid stuck some corn up her nose). They took us back to the overflow of the ER to get his IV and EKG tabs set up. He didn't even mind when they stuck the needle in above his wrist. They gave him some versed, which made him a little loopy. From there they wheeled him back to the scanner room. They had to strip him down for scan, and when they tried to hold his legs down he got mad. He pretty much screamed through the whole procedure. I can't say I blamed him. It was all really ludricous. My favorite part was when he peed on the nurses and techs. They got all the pictures they needed and informed us that they didn't see anything unusual.
The scans and ultrasound were sent to the doctor at the health center who called to let us know Samuel has a mild trabeculation in the wall of his bladder. Random. They were looking for reflux into the ureters and kidneys or a shortened urethra, which they didn't find. He urged us to go see a pediatric urologist to make sure everything was okay. So yesterday we drove up to Salt Lake to Primary Children's Medical Center to meet with a specialist. She informed us that everything looked perfectly normal (surprise) and that she wasn't worried about him. Then, as a reward for his visit, she gave him a cheap plastic hippo made in China, saying he could suck on its head. What kind of pediatrician gives an infant cheap plastic made in China? Honestly.
So Samuel's bladder is better, although I'm not convinced there was ever anything wrong with it. We're glad we made sure, but we're not looking forward to the medical bills on the horizon. Just another example of unnecessary care and procedures to save a physician from a malpractice lawsuit.
Ashton's Speech for the Natalie's Wish Event 2017 - Here are the full remarks that Ashton gave at this year's Natalie's Wish Event: A few weeks ago my four-year-old, Lars, who has cystinosis, got home from...
3 weeks ago